I started to write this book a few years ago, around 2017/18 - aiming to help people who were in a similar position to what I found myself in, whilst hoping to allow others to recognize the challenges we face daily. Busy, alone, and desperate to make everything work, juggling so many balls it becomes impossible to keep up with it all. My book is a factual account of just a 4 1/2 year time period, set between January 2012 and May 2016. There are plans for a follow up, which will include other areas not yet discussed and will likely cover another four or probably a slightly longer time frame. My blog will be my actual book and anyone who is living as an unpaid carer may be interested, as may anyone that knows an unpaid carer. Please do read this to discover what it is truly like. Mine admittedly is an extreme case of unfortunate yet sometimes happy events. However, so many people out there are completely unaware of what carers (unpaid in this case) do on a daily basis. Other people interested in Autism, Heart Attack and Cancer - in this case specifically Oesophageal Cancer will also be interested.
To help the book flow easier, I start on New Years Eve 2011 and work chronologically through. I venture to the past often, discovering and remembering what I did not know at the time and also to lighten the mood when events become tough.
I am not certain how frequently each blog will be published on here - much of the book is written, but some chapters require medical notes being referred to and this may take a while.
Depending on length of the chapters, some may require one - three blogs each. Poppy and Jack are my children, but not their names. The hospitals are correct, professionals locations and other people will all have their identities protected and changed for the purpose of this book.
If you have any questions about the issues raised, please do feel free to message me and I will help where I can. There are lots of places on the World Wide Web you can seek support from, including many groups that you can join and chat to. I did not know they existed at the time and may have been of some use. If you are a carer going through what we see as normal but is actually very difficult, my heart truly goes out to you. I know it is hard, but try to think of yourself, see if someone can give you that five minute break, or a cup of tea. Know you are not alone and I do recommend joining a group to chat to other like minded people that will understand without even having to ask. If you know a carer - please take the time to ask if they would like you to make them a cup of tea or help them - even for five minutes. Who knows, you could develop a new friendship.
Please remember that at the time of first writing this blog it is April 12th 2020 - so we are in Covid 19 lockdown here in the UK - so social distancing must be acknowledged and applied to the rules of your own country - but when we are sorted again and the virus beaten, then please don't forget to help a carer.
My heart goes out to all those affected by Covid-19 and to the amazing NHS staff whom I have relied on so heavily in the past for my own family. Also to the Government, every key worker and any other person helping to keep us going in these very strange time. And to all those around the globe working hard to save us all in whatever way they can, big or small.
Please be kind to each other.
I will put the first chapter up soon. Take care. Carrie
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